Raising Awareness of Medical Advancements
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Rich G
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- Oviedo, FL
- United States
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one thing I have learned about PT and MS. The two do not mix if you do not have a Physical Therapist that has been specifical;y trained in treating MS patients. Not one that has treated them in the past, but one who has been trained to understand th…
I am familiar with the trials you are looking at doing. they give you a chemo type drug to compromise your immune system and clear out anything that might hurt your chances of success. Personally, I would not take part in any trial that uses chemo t…
I was wondering if you could give me more specifics of the before and after effects of the treatment. what you could not do before that you can do now? What was the extent of your MS effects on mobility and what is it like now?
Profile Information
- I'm from ... (city / state / country)
- Orlando
- I'm Here As ...
- Potential Adult Stem Cell Therapy Patient
- My Diagnosis, My Story ...
- I have PPMS now, have been on Avonex and Tysabri and have had no help as my symptoms have worsened. I am very interested in ASCT in Costa Rica or Panama. I am a Research Advocate for the NMSS in the Central Florida chapter. I was just interviewed in July 09 on Orange TV in Orlando to tell my story as part of a show they did on MS. I have been involved in 2 studies, one for a oral medicine for MS and one for memory in MS patients. The oral medicine study I had to go off of because of another unrelated health issue. And the Memory study...I forget what happened there! :-)
- My Family, My Hobbies, My Goal ...
- My goal is to play golf again and stop slowing down and start moving forward...quicker! I hate walking slower than my 83 year old mother in law!
Comment Wall (10 comments)
- At 4:02pm on August 7, 2009,
Lisa Lacey said…
- Hi Rich. Thanks for the invite this looks like a very informative site. You know me I am like me want to be the know it all. Or at least try right.
- At 12:29am on August 7, 2009,
ASCT Site Admin said…
- Thank you, all feedback, good or bad, is always appreciated :-)
- At 12:21am on August 6, 2009,
ASCT Site Admin said…
- Again, than you very much for another helpful contribution of good things for MS folks to utilize in healthy work-outs :-)
- At 7:47am on August 4, 2009,
Janice Fuller said…
- I thought it turned out good too. BTW, post any info you like along those lines, that's what it's all here for, or you can always send it to me & I will post it. You know how we MSers definitely want to know what specifically works or worked for another MSer :-)
- At 8:51pm on August 3, 2009,
Eric Johnson said…
- Rich,
We went in Aug 08 for 2 weeks, and came back in June 09 for 2 weeks. It gets to be a long time for 2 weeks, meaning homesick. I am glad we did itthat way, I could not have done 4 weeks at a time.
I have gloves, LOVE them .
Keep in touch, any questions send them to me.
- At 2:26pm on August 1, 2009,
Janice Fuller said…
- Thank you for the swim info! I posted it ~ CLICK HERE
- At 1:44pm on August 1, 2009,
Eric Johnson said…
- Rich thanks for the site I ordered the fins yesterday, can't wait to try them out....
- At 7:27pm on July 31, 2009,
KENNETH W. HEATHINGTON, PH.D. said…
- We took my brother-in-law, David Freeman, down to Costa Rica in June. He had MS real bad. He is doing great now. He has to take physical therapy three times per week to get his balance and to train his brain to learn to walk again. He is so pleased with the results and continually tells me that he is just a new person. He is like Holly Huber who has a video on this blog.
- At 10:51am on July 30, 2009,
Eric Johnson said…
- Rich I have seen minor improvements more the first time, which fins did you order?
- At 11:00pm on July 28, 2009,
Janice Fuller said…
- Hi Rich, welcome to the site ~ pls let me know if you have any questions. Here's a link to the group specific to MS.
I would love to get info on your interview! Is there a video we can add? Also, any of the study info you can Blog about or start a Forum Discussion, etc ~ sound interesting!
Welcome to
Adult Stem Cell Therapy
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By NATASHA SINGER and DUFF WILSON
Published: December 12, 2009
SOURCE: http://www.nytimes.com/2009/12/13/business/13drug.html?em
MILLIONS of American women in the 1990s were told they could help their bodies ward off major illness by taking menopau…
Hi Everyone,
Have you heard of this. There is research going on in Buffalo right now....
CCSVI in Multiple Sclerosis just google it there is a bunch of stuff on this on Youtube and on Canadian News... The Canadian MS Society is opening up funding…
Hi Everyone,
Have you heard of this. There is research going on in Buffalo right now....
CCSVI in Multiple Sclerosis just google it there is a bunch of stuff on this on Youtube and on Canadian News... The Canadian MS Society is opening up funding…
There are quite a few people here on this site ; Janice Fuller and two that come to mind immediately. There is about 80-100 people from D/FW that have been. Only a fraction of us show up at a monthly meeting but most are interested in talking. On to…
Thanks Preston, that is wonderful to hear. Who else do you know of that has gone to Costa Rica that would not mind discussing the journey with a prospie like me?
I believe they understand it as much as they can. Dr. Neil Riordan, who is the CEO of the clinic, has a very good understanding of what is going on...You can find a number of his papers posted online by searching.. He is a research scientist and dir…
Dear Preston, I have Cerebral Palsy and am on the fence about ASCT. I do not have the terrible fear and pain of a degenerative diisease breathing down my neck as you did; I think that makes the leap of faith a little harder for me, if you know what…
Hey everyone,
I am new here, and seeking information and perspective. I am a 25 yr old male afflicted with moderate Cereral Palsy. I am looking to contact other CP patients (and their loved one) who have gone the ASCT route. I have heard so much mi…
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