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Jill Schick
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- I'm from ... (city / state / country)
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- Family or Friend of a Loved One w/ a Dreaded Disease
- I Had My Adult Stem Cell Transplant Performed in ...
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- My husband has had MS for the last 20 years. In the last 5 years, he has gotten worse. This past September 2009, he had the 1st phase of ASCT in Tel Aviv, Israel at Dr. Slavin's clinic. We are awaiting word from the clinic, any day now, to fly to Athens, Greece where the 2nd phase of the therapy will take place: having the stem cells injected back into my husband's spine him. Then we see what happens!
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By NATASHA SINGER and DUFF WILSON
Published: December 12, 2009
SOURCE: http://www.nytimes.com/2009/12/13/business/13drug.html?em
MILLIONS of American women in the 1990s were told they could help their bodies ward off major illness by taking menopau…
Hi Everyone,
Have you heard of this. There is research going on in Buffalo right now....
CCSVI in Multiple Sclerosis just google it there is a bunch of stuff on this on Youtube and on Canadian News... The Canadian MS Society is opening up funding…
Hi Everyone,
Have you heard of this. There is research going on in Buffalo right now....
CCSVI in Multiple Sclerosis just google it there is a bunch of stuff on this on Youtube and on Canadian News... The Canadian MS Society is opening up funding…
There are quite a few people here on this site ; Janice Fuller and two that come to mind immediately. There is about 80-100 people from D/FW that have been. Only a fraction of us show up at a monthly meeting but most are interested in talking. On to…
Thanks Preston, that is wonderful to hear. Who else do you know of that has gone to Costa Rica that would not mind discussing the journey with a prospie like me?
I believe they understand it as much as they can. Dr. Neil Riordan, who is the CEO of the clinic, has a very good understanding of what is going on...You can find a number of his papers posted online by searching.. He is a research scientist and dir…
Dear Preston, I have Cerebral Palsy and am on the fence about ASCT. I do not have the terrible fear and pain of a degenerative diisease breathing down my neck as you did; I think that makes the leap of faith a little harder for me, if you know what…
Hey everyone,
I am new here, and seeking information and perspective. I am a 25 yr old male afflicted with moderate Cereral Palsy. I am looking to contact other CP patients (and their loved one) who have gone the ASCT route. I have heard so much mi…
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When I talk to them I will let you know what they say. I do know Im not staying here in the USA where they have no hope. Im going to find a treatment for my husband. I won't stop until I get him some help.
Barbara
I am sorry that we only treat patients in the relapsing remitting stage of the disease.
We tried treating progressive patients and stem cell transplant did not help them.
In Costa Rica, I think they just inject stem cells without suppressing the immune system.
I believe their hope is that the stem cells will repair the damaged tissue.
However, it is tricky to get the stem cells to grow/repair specific neuro cells and not turn into tumors.
You will want to investigate what they do thoroughly- how many people have they treated, has it helped, and can you talk to someone who has gone through it.
You might want to contact the MS society and other MS groups to see if they know more about it. Please know that we are not MS specialists- we specialize in immunotherapy- specifically stem cell transplant and all I can tell you is that what we do did not help progressive MS.
Wishing you the Best,
Kim
Clinical Nurse Study Coordinator
Northwestern University School of Medicine
750 North Lake Shore Drive, suite 649
Chicago, Illinois 60611
312.908.0061 direct
312.908.0064 fax
along with the Rebif shots. Im pretty sure we will be headed for Costa Rica we had our passports renewed yesterday so we will be able to leave quick if need
be. Please keep me posted on anything you here also.
Barbara
We go see his Dr June 22nd to let him know we are not happy with Rebif and see what he thinks of ur going out of country. I can tell you right now if the Dr was the one with MS they would be on a plane out of here for treatment.
Keep me posted on what you find out we have filled out the application for Costa Rica so now will wait for them to call us. I have also gotten a call from China..
Barbara
Barbara
Actually, I go to Costa Rica on June 13th for treatment 15th -26th.
I originally wanted to go to the XCell Clinic in Cologne, German ~ I am impressed by what I saw of their clinic online, & I know the incidence of MS in Germany is high, & it's cheaper.
Then I began learning of how many folks in the Dallas / Fort Worth area w/ MS have gone to Costa Rica, & I learned about the country, & I've been told by folks that have been there how the hospital rivals any in the USA & that everyone clinical speaks English.
True selling point ~ meeting others from DFW that come back w/ sooo much relief of symptoms & being able to relate to comparisons of heat intolerance in Texas, etc.
Every center has their own protocol ~ as I understand that of ICM, they extract not only stem cells but also fat cells (via Lipo) as these are beneficial to the process, & hey use umbilical cord blood donated from a healthy newborn.
Trtmt in CR can be 2 wks or 30 days, based on the individual's condition. Physical therapy is to be intense. I did learn today from someone in Florida w/ MS that he has friends that go back every year to Germany for stem cells ~ makes me wonder if there's a need to repeat, based on the single injection, but that's a question mark.
I'm pretty sure you stand a good chance of talking to Dr. Riordan, though I've never tried. I would suggest calling Cindy Cunningham at ICM & asking. I also think I am correct in saying that Dr. Alanis out of San Antonio will speak w/ you ~ he's who reviewed my recs, he's also had stem cells himself at ICM (for cardio) ~ there's a video of his in the video gallery on this site.
I'm hand-carrying my pymt (check from NTAF) ~ ICM doesn't require pymt until you arrive for trtmt. I do know of a doc in Israel (I think) that requires something like $500 to review your recs, I guess that weeds out the tire kickers & leaves him time for patients, & I assume it applies to trmt ...
Back to different centers w/ different protocols ~ I believe it's Beike in China that suppresses immune sys w/ chemo, but don't hold me to that, I could be wrong or they may have adapted.
It's so good to hear that your husband's docs are behind him in this!
Here's a link to info I've compiled on various centers ~ http://adultstemcelltherapy.ning.com/page/centers-1 & the ICM center is at the top (for ph# you requested) ~ pls do look further into protocols of various places, I think it helps in decision making .
Best wishes to both of you! Please let me know if I can help w/ more answers.