Raising Awareness of Medical Advancements
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Beth Friedlin
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- I'm from ... (city / state / country)
- Keystone Heights/ Florida/ United States of America
- I'm Here As ...
- Family or Friend of a Loved One w/ a Dreaded Disease, Caregiver
- My Diagnosis, My Story ...
- My husband, Mark, was diagnosed almost two years ago in December (2007). He had already progressed to the point of not being able to walk unassisted when we went to an emergency room that couldn't turn us away for not having insurance- which is why he hadn't been to a neurologist as well. He is now in a power chair full time but can move himself to and from bed, toilet, etc.. Our estimation is that Mark has had MS for 5-8 years, considering some of the symptoms that he exhibited years ago are some that he still has now. He was first put on Rebif and after 8 months, we decided that the side effects were debilitating enough that he should stop taking it. He switched to LDN. Yes, this is not a mainstream drug, but he likes it and although I begin to think that he needs maybe Copaxone along with the LDN, he won't consider taking shots again. I am grounded in reality, yet believe in miracles, too. I would love for Mark to have the chance at stem-cell therapy.
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Adult Stem Cell Therapy
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By NATASHA SINGER and DUFF WILSON
Published: December 12, 2009
SOURCE: http://www.nytimes.com/2009/12/13/business/13drug.html?em
MILLIONS of American women in the 1990s were told they could help their bodies ward off major illness by taking menopau…
Hi Everyone,
Have you heard of this. There is research going on in Buffalo right now....
CCSVI in Multiple Sclerosis just google it there is a bunch of stuff on this on Youtube and on Canadian News... The Canadian MS Society is opening up funding…
Hi Everyone,
Have you heard of this. There is research going on in Buffalo right now....
CCSVI in Multiple Sclerosis just google it there is a bunch of stuff on this on Youtube and on Canadian News... The Canadian MS Society is opening up funding…
There are quite a few people here on this site ; Janice Fuller and two that come to mind immediately. There is about 80-100 people from D/FW that have been. Only a fraction of us show up at a monthly meeting but most are interested in talking. On to…
Thanks Preston, that is wonderful to hear. Who else do you know of that has gone to Costa Rica that would not mind discussing the journey with a prospie like me?
I believe they understand it as much as they can. Dr. Neil Riordan, who is the CEO of the clinic, has a very good understanding of what is going on...You can find a number of his papers posted online by searching.. He is a research scientist and dir…
Dear Preston, I have Cerebral Palsy and am on the fence about ASCT. I do not have the terrible fear and pain of a degenerative diisease breathing down my neck as you did; I think that makes the leap of faith a little harder for me, if you know what…
Hey everyone,
I am new here, and seeking information and perspective. I am a 25 yr old male afflicted with moderate Cereral Palsy. I am looking to contact other CP patients (and their loved one) who have gone the ASCT route. I have heard so much mi…
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